Sarepta Therapeutics
AssociateDirector,Patient Affairs
Sarepta Therapeutics, Cambridge, Massachusetts, us, 02140
Why Sarepta? Why Now?The promise of genetic medicine has arrived, and Sarepta is at the forefront. We hold leadership positions in Duchenne muscular dystrophy (DMD) and limb-girdle muscular dystrophies (LGMDs), and we currently have more than 40 programs in various stages of development in gene therapy, RNA and gene editing. In 2023, we launched our fourth therapy and the first ever gene therapy to treat Duchenne.We're looking for people who see unlimited potential in themselves and who are motivated by an unwavering commitment to patients.What Sarepta OffersAt Sarepta, we care deeply about all the people in our community and believe in the importance of supporting them in all aspects of their lives. We aspire to maintain a culture that acknowledges people bring their whole selves to work, and we will strive to help everyone in our community integrate their work and personal lives while maintaining productivity. We are committed to offering a range of benefits and work-life resources designed to support people in the following areas:Physical and Emotional WellnessFinancial WellnessSupport for CaregiversFor a full list of our comprehensive benefits, see our website:
https://www.sarepta.com/join-usThe Importance of the RoleThe Associate Director, Patient Affairs creates and maintains strong relationships with global rare disease communities and patient advocacy organizations in the neuromuscular space to enhance the individualized approach to patient care that defines Sarepta's commitment to our patient communities. This position reports to the Senior Director, Patient Affairs to lead our collaborations with patient advocacy groups worldwide in various rare disease communities, represent the patient perspective as an active participant of cross-functional working teams, and develop innovative solutions and programs to meet the dynamic needs of the patient communities.The Opportunity to Make a DifferenceProviding insight into the pulse of disease communities and ensuring strong collaborations with patient advocacy groups worldwide, especially in the neuromuscular communityEngaging the Advocacy Community for feedback regarding critical decisions that will impact the communityChampioning community insights, concerns and perspectives inside and outside SareptaBuilding relationships and collaborating with existing and/or evolving patient associationsSuccessfully working with external patient organizations to help them grow and develop into high-functioning, sustainable organizationsStaying current with relevant information and resources regarding industry and health care legislation, RNA and Gene therapy therapeutic development, and comprehensive disease state awarenessProviding updates regularly to disease communities, especially as related to clinical trial and pipeline evolution. Develop presentations for patient conferences and workshopsDriving optimized patient engagement and contributing to the development of patient experience dataOversee development and management of community-facing educational presentations and newsletter materials, building strategy to suit the changing landscape of in-person community engagementEnsures that all employees at Sarepta have an opportunity to learn about the patient perspective and Sarepta's commitment to the communities we serveWorks compliantly in interactions with patient advocates, patients, families and caregivers per internal and external guidelinesResponsible for project management and execution of patient affairs initiativesCompletes administrative duties in a timely fashionOther related duties as requiredMore about YouPrevious global work with Advocacy organizations, and communities in the rare disease field strongly preferredMinimum of 5 years of patient advocacy experience, with 10+ years of progressive experience in a healthcare / biopharma settingBachelor's degree in science, social science or related field. Advanced degree in health sciences preferredBilingual- English/Spanish preferredStrong project planning and management skills, including problem-solving and risk mitigation.Self-directed learner with an understanding of drug development and clinical program development. Knowledge of various global healthcare systems and key policies relevant for pharmaceutical market access for highly innovative medicinesIllustrated experience through launch phase of rare disease therapies in multiple jurisdictions highly preferredA team player who will work collaboratively to support team success. Able to create a positive work environment for team to help retain and develop staffExcellent interpersonal, oral and written communication skills. Must have strong presentation skillsStrong PowerPoint presentation content and design skills, proficient in Microsoft Word systemsAbility to relate with a diverse group of individuals and develop rapport quickly. Ability to influence in a proactive, objective and diplomatic manner within all levels of the company and outside community leadersWork collaboratively, independently and with a sense of urgency. Demonstrated ability to work under pressure and manage multiple responsibilitiesBoston area location a plus, in office attendance will be required at regular intervals.Expect 30-40% travel, including some international travel, with significant weekend involvement, must reside within 40 miles of an international airportWhat Now?We're always looking for solution-oriented, critical thinkers.So, if you're comfortable with ambiguity and candor, relish challenging yourself, and place kindness and integrity at the forefront of how you approach your peers and work, then we encourage you to apply.#LI-Remote #LI-TR1 This position is remote. However, you will be expected to work on site at one of Sarepta's facilities in the United States and/or attend Company-sponsored in-person events from time to time.The targeted salary range for this position is $156,000 - $195,000 per year. Sarepta is making a good faith effort to be transparent and accurate around our hiring ranges. The salary offer is commensurate with Sarepta's compensation philosophy and considers factors including, but not limited to, education, training, experience, external market conditions, criticality of role, and internal equity.Candidates must be authorized to work in the U.S. Sarepta Therapeutics offers a competitive compensation and benefit package. Sarepta Therapeutics is an Equal Opportunity/Affirmative Action employer and participates in e-Verify.
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https://www.sarepta.com/join-usThe Importance of the RoleThe Associate Director, Patient Affairs creates and maintains strong relationships with global rare disease communities and patient advocacy organizations in the neuromuscular space to enhance the individualized approach to patient care that defines Sarepta's commitment to our patient communities. This position reports to the Senior Director, Patient Affairs to lead our collaborations with patient advocacy groups worldwide in various rare disease communities, represent the patient perspective as an active participant of cross-functional working teams, and develop innovative solutions and programs to meet the dynamic needs of the patient communities.The Opportunity to Make a DifferenceProviding insight into the pulse of disease communities and ensuring strong collaborations with patient advocacy groups worldwide, especially in the neuromuscular communityEngaging the Advocacy Community for feedback regarding critical decisions that will impact the communityChampioning community insights, concerns and perspectives inside and outside SareptaBuilding relationships and collaborating with existing and/or evolving patient associationsSuccessfully working with external patient organizations to help them grow and develop into high-functioning, sustainable organizationsStaying current with relevant information and resources regarding industry and health care legislation, RNA and Gene therapy therapeutic development, and comprehensive disease state awarenessProviding updates regularly to disease communities, especially as related to clinical trial and pipeline evolution. Develop presentations for patient conferences and workshopsDriving optimized patient engagement and contributing to the development of patient experience dataOversee development and management of community-facing educational presentations and newsletter materials, building strategy to suit the changing landscape of in-person community engagementEnsures that all employees at Sarepta have an opportunity to learn about the patient perspective and Sarepta's commitment to the communities we serveWorks compliantly in interactions with patient advocates, patients, families and caregivers per internal and external guidelinesResponsible for project management and execution of patient affairs initiativesCompletes administrative duties in a timely fashionOther related duties as requiredMore about YouPrevious global work with Advocacy organizations, and communities in the rare disease field strongly preferredMinimum of 5 years of patient advocacy experience, with 10+ years of progressive experience in a healthcare / biopharma settingBachelor's degree in science, social science or related field. Advanced degree in health sciences preferredBilingual- English/Spanish preferredStrong project planning and management skills, including problem-solving and risk mitigation.Self-directed learner with an understanding of drug development and clinical program development. Knowledge of various global healthcare systems and key policies relevant for pharmaceutical market access for highly innovative medicinesIllustrated experience through launch phase of rare disease therapies in multiple jurisdictions highly preferredA team player who will work collaboratively to support team success. Able to create a positive work environment for team to help retain and develop staffExcellent interpersonal, oral and written communication skills. Must have strong presentation skillsStrong PowerPoint presentation content and design skills, proficient in Microsoft Word systemsAbility to relate with a diverse group of individuals and develop rapport quickly. Ability to influence in a proactive, objective and diplomatic manner within all levels of the company and outside community leadersWork collaboratively, independently and with a sense of urgency. Demonstrated ability to work under pressure and manage multiple responsibilitiesBoston area location a plus, in office attendance will be required at regular intervals.Expect 30-40% travel, including some international travel, with significant weekend involvement, must reside within 40 miles of an international airportWhat Now?We're always looking for solution-oriented, critical thinkers.So, if you're comfortable with ambiguity and candor, relish challenging yourself, and place kindness and integrity at the forefront of how you approach your peers and work, then we encourage you to apply.#LI-Remote #LI-TR1 This position is remote. However, you will be expected to work on site at one of Sarepta's facilities in the United States and/or attend Company-sponsored in-person events from time to time.The targeted salary range for this position is $156,000 - $195,000 per year. Sarepta is making a good faith effort to be transparent and accurate around our hiring ranges. The salary offer is commensurate with Sarepta's compensation philosophy and considers factors including, but not limited to, education, training, experience, external market conditions, criticality of role, and internal equity.Candidates must be authorized to work in the U.S. Sarepta Therapeutics offers a competitive compensation and benefit package. Sarepta Therapeutics is an Equal Opportunity/Affirmative Action employer and participates in e-Verify.
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