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ALS Northwest

Executive Director

ALS Northwest, Portland, Oregon, United States, 97204


Reports to:

Board Chair and Board of DirectorsSalary:

$130,000-140,000 annuallyBenefits:

100% Employer paid insurance for employee (medical, dental, vision), Disability, Retirement, PTO (see benefits for full detail)Hours:

Full-time, Exempt, 40 hours, Monday -- Friday with occasional weekend or evening events.Location:

Portland, OR.

(Travel requirements for this position entail weekly commuting to appointments across Portland, with quarterly travel expected throughout Oregon & Washington.)About Us:ALS Northwest is committed to enhancing the quality of life of people living with ALS through the many free programs we offer to individuals and families affected by ALS. Our programs are designed to meet these essential care needs as well as the emotional needs of those in our community and caregivers. We provide services across Oregon, SW Washington and advocacy for people with ALS across the Pacific Northwest. ALS Northwest strives to provide a supportive community and valuable resources to empower individuals living with ALS to lead fulfilling lives until the day a cure is found.Our Vision:

An end to ALS.Our Mission:

To provide comprehensive support and advocacy for people with ALS and their families, while advancing research for new treatments and an end to ALS.About You:You are an experienced and dedicated leader that has worked in organizations supporting individuals and families dealing with life-altering and/or terminal diagnoses like ALS. You recognize how challenging the medical and treatment process can be for families, and you are passionate about helping others navigate these issues. The importance of building strong communities, supportive networks, and partnerships is something you value and see as critical in carrying out the mission of the organization.You understand the power of a clear vision, strategic and fundraising plan to provide the necessary resources to sustain our work and meet our goals. You get energized from making an impact, running a growing nonprofit, engaging in advocacy, and implementing effective policies and systems that enable your team to thrive. As you lead your team in the work, you enjoy developing and supporting your team to be successful while ensuring the prioritization of programs and tasks that provide a solid direction when work seems to get overwhelming. You root for your team to achieve their dreams and goals through active mentorship and professional development by creating a supportive environment, understanding the importance of your team, and valuing their growth.Position Summary:Reporting to the Board of Directors, the Executive Director will develop, grow, and enhance the organization by working with the Board to provide strategic leadership and direction to fulfill ALS Northwest's objectives and ensure the organization's financial viability and growth. This position plays a key role in helping to build the Board and identifying prospects that can add critical skills and philanthropic capacity as appropriate.The Executive Director will focus on increasing the visibility and awareness of ALS Northwest and ensure that the organization continues to remain at the forefront in the field, funding cutting-edge research, advancing comprehensive care services and community engagement activities, and pursuing public policy priorities that benefit the ALS community. A vital priority will be for the Executive Director to work with ALS Northwest constituents and supporters to identify and secure financial resources, both public and private, to achieve these goals. Leading a team.

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